We all know the many positive aspects of the ocean and surfing lifestyle - mental, emotional, and physical - that everyone, including people living with cystic fibrosis, can benefit from. Surfing also played a role in the development of hypertonic saline, an important treatment for those living with cystic fibrosis. Pipeline to a Cure was created 17 years ago to celebrate this connection between the surfing world and people living with cystic fibrosis. Uniting surfing legends, Olympians, musicians, and generous corporations, we come together in the common goal of improving the lives of people living with CF.

EVENT INFO

About Pipeline to a Cure
 

18 years ago Pipeline to a Cure was founded to celebrate the role surfing played in the development of hypertonic saline, an important treatment for those living with cystic fibrosis, and no other community understands this better than surfers. Legendary surfers and watermen Laird Hamilton, Dave Kalama and Reef McIntosh have stepped up as honorary co-chairs of what has become one of the most popular and anticipated philanthropic events in Orange County CA. Now in its 17th year, Pipeline to a Cure has raised more than $4.5 million in net revenue to help find a cure for this inherited deadly disease. More research and treatments are needed to ensure that everyone with cystic fibrosis can live a long and healthy life.

ABOUT THE CYSTIC FIBROSIS FOUNDATION

The mission of the Cystic Fibrosis Foundation is to cure cystic fibrosis and to provide all people with CF the opportunity to lead long, fulfilling lives by funding research and drug development, partnering with the CF community, and advancing high-quality, specialized care.

The CF Foundation is the world's leader in the search for a cure for cystic fibrosis, and nearly every CF-specific drug available today was made possible with our financial support. We are a donor-funded, 501(c)(3) nonprofit that is fully accredited by the Better Business Bureau's (BBB) Wise Giving Alliance program.

Shelby Klug

Shelby brought her love of all things Green Day to the Pipeline to a Cure family after attending the event with her parents. Shelby likes to say that CF stands for Chronically Fabulous! In 2016 Shelby candidly described her near-death respiratory failure that left her in a medically induced coma for weeks. Shelby required a double lung transplant, and after 84 days in the hospital went home in time for her 18th birthday. Despite missing the first semester of her senior year, Shelby completed two semesters of work in a few months and graduated on time with a 4.0. She achieved her goal of walking across the stage to accept her Orange Lutheran diploma. In May of 2022, Shelby will be graduating from Chapman University with a degree in Business Administration and a minor in Philosophy. Shelby continues to inspire everyone she comes in contact with especially other people with CF.

STACY CARMONA

Stacy has been involved with Pipeline to a Cure from its inception and has spoken at the pre-party as well as the main event to honor her dear friend Emily. Stacy is in her 30s and is married with a 4-year-old son named Micah and a baby girl on the way. She has devoted her career to patient advocacy and helping others with chronic illnesses. Stacy has rare CF mutations and is part of the 10% of people with CF who do not have a therapy to help correct their underlying cause of CF. Despite this, she remains hopeful to celebrate the cure for CF someday.”

will huston

Will is a first time Pipeline to a Cure ambassador in 2023, but is not new to advocating for those with CF. His family runs Hook the Cure – an event at which Will has been a spokesperson for years. Although a mediocre surfer at best, Will grew up in and around the ocean to which he credits a great deal for his health. Through the ups and downs of life with CF, Will has been described as one who “attacks the day with an enthusiasm unknown to mankind” and is adamant about staying active. Will graduated from the University of Notre Dame in 2020, and currently works in industrial real estate. When he is not fishing, snowboarding, working out, or attempting to surf, he is finding some other way to “Live the Dream”, a dream that was not a guarantee before starting Trikafta in 2020, which has changed his life tremendously.

cody allarte

Cody is a new ambassador to Pipeline to a Cure, having spoken at the pre-party for the first time in 2022, but he has been involved with the CF Foundation since his diagnosis when he was 12 years old. A strong advocate for CF, Cody serves on the Tomorrow’s Leaders Council, a member of the Foundation’s National Leadership Council, and his most fulfilling role as the Outreach Chair on the Orange County Chapter Board. Since his diagnosis, he and his family have been involved in numerous chapter events and initiatives. Cody says, “Speaking at events, sharing his story, and talking to the families of patients, and advocating for this important cause, is the most rewarding and therapeutic thing for him.” Now in his 30’s, Cody graduated from college and works in Emergency Operations in Orange County. He and his husband recently married and live in Long Beach, all of which Cody said wouldn’t be possible if it weren’t for Trikafta and the support from the CF Foundation.

CONTACT

Please contact Shaina Flesser or Katie Haynes at the Southern California Chapter of the Cystic Fibrosis Foundation for more information

Phone: 714.938.1393
Email: sflesser@cff.org | khaynes@cff.org
Address: 3 Corporate Park, Ste 260, Irvine, CA 92606